Advocacy
Duchenne Muscular Dystrophy
Connect with other families navigating Duchenne muscular dystrophy, plus foundations providing research and support.
Akari Foundation
Educates families on rare disease and Duchenne, advocates for the rights and needs of the Hispanic community, helps with resources, translations, interpretations, and connects families and other organizations.
Cure Duchenne
Dedicated to finding and funding a cure for Duchenne by breaking the traditional charitable mold through an innovative venture philanthropy model that funds groundbreaking research, early diagnosis, and community education.
Jett Foundation
Partners with individuals and families through educational programming, transformational summer camp experiences, financial support for emergencies and accessibility equipment, and by accelerating development of life-changing treatments.
Little Hercules Foundation
Serves the rare disease community through access advocacy and policy to ensure all rare disease patients get access to medically necessary treatment and care.
Muscular Dystrophy Association
Committed to transforming the lives of people affected by muscular dystrophy. Empowering families with support and funding research that delivers results.
Parent Project Muscular Dystrophy
Focused on accelerating research, impacting policy, demanding optimal care for every family, and striving to ensure access to approved therapies.
Team Joseph
Funds cutting-edge research to find a treatment or cure for Duchenne muscular dystrophy and improves the lives of patients and families through advocacy, mentoring, and direct support though the Duchenne Family Assistance Program.
DMD Foundation & Advocacy Resource List
Families don’t have to navigate this journey alone. Thankfully, there are foundations dedicated to making treatment affordable and advocacy groups devoted to finding a cure.
